I was diagnosed with Grade2/3, Stage 4 Follicular, Non-Hodgkins Lymphoma in February 09. My oncologist is taking a "Watch & Wait" approach to my treatment. After my last scan in July he told me to expect to have chemo within the next year. I am told that I may have chemo several times, in my lifetime. I am trying to find ways to deal with all the anxiety and fear that all cancer patients go through.
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My chemo treatment was RCHOP. So far so good. I have not seen the lymphoma survivor site. Thank you for suggesting it. I will have to try it out. Good luck with whatever you decide to do. Keep me posted on your decision and how it goes.
I have practiced yoga off and on for 30+ years - more "off" than "on" in the last 5 years, but I would love to get back into it and hope that I can find a studio nearby (I'm in Rochester) that will work with me.
I'm curious as to why your oncologist is in Philly - I always thought "Beaumont doctors" were the creme of the crop - is it because you have non-hodgkins lymphoma, or was this a personal choice?
I had endometrial cancer, and had a radical hysterectomy in July. While the tumor was contained within the uterus, they did find a few metastasized lymph glands, so I'm having 6 to 9 cycles of chemotherapy, three weeks apart.
I don't know what chemo drugs they might put you on if you go that route, but I will say that I have breezed through two treatments so far, with only a bit of fatigue afterwards. They've gotten very good with the anti-nausea meds. The day of treatment, and the day after, I feel fabulous! Then day 3 & 4 I am pretty much exhausted - but it's OK, I'm just scheduling my life around it now that I know.
In my case, they tell me the effects of the chemo is cumulative - so I don't know what it means when your oncologist says the drugs are less effective each time. Apparently it has something to do with the type of cancer and the specific drugs they give you.
Either way you go, I wish you the best and hope that you will stay in touch through this site. Perhaps at some point we could meet (in Southfield - a good halfway point!) for a cup of tea.
Have you heard of the book "Crazy Sexy Cancer Tips"? If not, go to www.crazysexycancer.com... written by a young woman with incurable liver cancer, it is full of great things to do, think about, or keep in mind as you travel down this "crazy, sexy" path...